Don't Mess With Naptime...Or Else

As I've mentioned before, fatigue has been one of the main and most problematic symptoms for me with my MS. Before I was diagnosed, I would wake up at 8 a.m., go for two hours, take a two hour nap, go for two more hours, take another nap, go for a few more hours, then go to bed. That was my day.
After my diagnosis, I was given some meds that help fight the fatigue and for the most part, they have made a huge difference. I am almost a half of a functioning person again. I do still need a nap but it's just one and it's only and hour and a half to two hours long. Not bad.
With the home renovation going on the past five months, the workers started to understand how important my having a nap was. If I got a nap, I was happy and chipper in the afternoon. No nap, watch out for the swinging cane. And since they're nice guys, they would work a little more quietly so that I could get my nap. I trained them well.
One group of people that I cannot get trained, though, is DirecTV. I can't tell you how much of a pain in my ass these people have become! All we want is for them to hook up the boxes in the new parts of the house and move one. That sounds simple enough right? Well, three times these people have come out, during naptime, only to find out that their workorder didn't say "You will actually have to work" on it and they all left without doing anything.
So, we rescheduled again for today. The hubs even made sure to schedule the guys to come before naptime so that I wouldn't kill them. The hours that they were supposed to show up were from 8 a.m. to 12 noon. I could handle that.
At 11:30, this really rude lady called from DirecTV to tell me that the guys are running late and they will now be here anywhere from now and between the hours of 2:30-5:30. Which, how in the world is that even a time frame?
I got a little, for lack of a nicer word, angry. I was going to have my nap today damnitt!
So, I taped a little note to the door for the guys for whenever they do decide to show up. It looks a little something like this:

I sure hope I hear them knock!

Sometimes You Just Gotta Do It, Even If Spite Is The Only Reason

Before MS showed up and changed my life, I used to do a lot of things. One of my favorite things was baking. I used to bake all the time. Seriously. I was one of those people who went to Costco, the bulk food heaven on earth, and bought the ginormous bags of flour, sugar, and chocolate chips.
I remember one time, as we were leaving Costco with my baking purchases, the guy at the door who checks your receipt said "Oh, you have a lot of baking stuff. You must have a baking business." I smiled politely and said "Nope, I'm just one of those people who is contributing to the ever growing obesity population in the country." Then I took my reciept, left the man standing there with a blank look on his face, and pushed my cart full of baking goods to the car.
Since the MS monster decided to show it's ugly face, one of my main problems has been fatigue. I've had months pass the I don't remember because I slept through them. Almost literally.
Today, I decided that I was no longer going to cower in the face of the monster. I was going to bake something if it killed me! I figured it wouldn't hurt me since i've lost almost 100 lbs. because of the meds the doctor has me on. I want a homemade cookie damnitt!
That's what I did too. I baked almost three dozen chocolate chip cookies. Remember the kind your mom or grandmother used to make that you knew you couldn't buy in any store because these were made with love? That's the ones I made.
So, I did it. I'm exhausted now, but I did it. The way I look at it is, sometimes, you've just got to do it, even if the only reason you've got is spite.